Update

It's been a number of months since my last post and life keeps moving on as it always does. ALS is slowly but unrelentingly progressing.  I've been intending to write here more often, but struggling to get started, however, inspired by my walk on a beautiful spring day, here I am.

The last few months have been everything from wonderful to incredibly frustrating.  The support I've received from family and friends has been nothing short of spectacular.  The Ride to Defeat ALS was a spectacular success and a great party. The disease, however, relentlessly progresses.  Things that used to be simple now are anything from difficult to impossible.  The worst losses have been in my hands and arms, but my legs have started to be affected too.

I've really struggled writing an update to my status, and I'm really not sure why.  I think, maybe, it's because so much has happened since my last writing and I don't know where to start.  I've had a number of ideas, but never got started on them.  Why?  I don't know but this post is a start on working through the backlog.  I intend to make this a habit, so stay tuned.